Mein Artz (My Doctor)
by Lawrence Alma-Tadema
There is not yet a cure for lupus. But neither is there a cure for diabetes, rheumatoid arthritis and countless other diseases. Though lupus cannot be cured, in most cases it can be controlled. The key to living with lupus is to pay close attention and to find the best medical care available.
Educate yourself. Your observations about the illness, as it is affecting you, are critically important to decisions a doctor may make about treatment. Whatever treatment plan the doctor settles on, it should be one that reflects your values, your goals and the doctor’s expertise.
I have posted a number of articles–listed on the left side of this page—that talk about treatment options. In addition to medications, there are lifestyle modifications that may be helpful in living productively with lupus. These include avoiding: ultraviolet light; stress (I haven’t figured out how to do that yet); silica and pesticides.
Two medications, Plaquenil and Quinoric, which are almost identical in formulation, are compared below.
Several aspects of lupus treatment, such as differences between men and women, and differences in the way individuals metabolize medications, are discussed. Additionally, emotional manifestations of lupus are addressed as are non-medicinal interventions, such as vitamin D supplementation.
I have stated elsewhere that I am a patient, not a doctor. I do not have professional credentials in medicine; the information I provide is not intended to suggest one particular treatment is superior to another. What I want to accomplish with this website is simply this: patients should understand their disease; they should understand why a doctor has chosen a particular treatment path; and they should know enough about their treatment options to participate in decisions that relate to their care.
As the weeks pass, and as I learn more, I will post more–about medications, research breakthroughs, etc. I hope that my posts spur others to check out the vast resources open to all of us. Medical journals–the same material doctors use to “keep up”–is often available, free, to the general public. I invite all of you to read, and to learn.